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Toddler limping for over two weeks with clear tests

43 replies

ForNattyAquaWasp · 11/09/2026 20:25

Hey,
I have a 2.5-year-old daughter who has been limping for over 2 weeks, and I’m desperate for some advice.
She had transient synovitis last November, but this time the limp has lasted much longer and wasn’t preceded by a viral infection. Transient synovitis has now been ruled out as there was no fluid found in either hip.
We’ve been back and forth between the GP and A&E multiple times. She’s had several X-rays, blood tests and ultrasounds of her hips and knees, all of which have been clear. Despite the limp progressively getting worse, we’ve repeatedly been sent home and told to wait a few more days.
We even saw a private podiatrist, who said they couldn’t help without a diagnosis. Our GP contacted the hospital’s paediatric team, who advised us to return to A&E, but after yet more tests today, we were sent home again and told to go back to the GP.
I’m really struggling because I know my child isn’t right, yet everyone keeps telling us she’s fine. Has anyone experienced anything similar or have any advice on what we should ask for next?

OP posts:
Are your children’s vaccines up to date?
nocoolnamesleft · 11/09/2026 21:29

bonnemaman1990 · 11/09/2026 21:15

National picture I think which is dire, but if this limp doesn’t resolve this is the type of problem where we would expedite this. I regularly do them on my on calls ad hoc.

Which probably makes the relevant question: has the child been seen at a tertiary centre, that can actually enable this kind of stuff, or just a local DGH?

Kosenrufugirl · 11/09/2026 21:37

Has anyone checked your toddler's vitamin D levels? I heard low vitamin D can levels can cause pain in muscles and bones

ForNattyAquaWasp · 11/09/2026 21:40

nocoolnamesleft · 11/09/2026 21:29

Which probably makes the relevant question: has the child been seen at a tertiary centre, that can actually enable this kind of stuff, or just a local DGH?

Yes the hospital we have attended a&e on 5 occasions this week is actually a major tertiary referral hospital, I’m just unsure on what to do as I feel as though we keep trying and getting fobbed off.

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ForNattyAquaWasp · 11/09/2026 21:40

Kosenrufugirl · 11/09/2026 21:37

Has anyone checked your toddler's vitamin D levels? I heard low vitamin D can levels can cause pain in muscles and bones

Yep vitamin d is perfect, was the first thing I asked to be checked!

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Truetoself · 11/09/2026 21:52

See a private paediatrician who will take time to review everything to date and come up with answers or a plan. A general paediatrician rather than a specialist as you don’t know what’s going on yet

OneLilacHedgehog · 11/09/2026 22:21

I disagree with the suggestion to see a private paediatrician. It won't add anything useful by itself.
You have been given advice by a medic on this thread to push for an MRI.

OneLilacHedgehog · 11/09/2026 22:27

Rarer causes are,
Celiac disease and Crohn's can cause joint pain and a limp, alongside weight loss and sweating.
Or crmo mimics bone infection symptoms, but traditional infection tests come back negative.

MyAmberFinch · 11/09/2026 22:31

bonnemaman1990 · 11/09/2026 21:04

I’d be pushing for an MRI if she was my child, however would need to be done under general anaesthetic (as she won’t/can’t lie still long enough). I’m a paediatric anaesthetist and I’ve done many many limping toddler MRI scans- may well be normal and GA for nothing but it would reassure me nothing missed.

This.

Please take her back to hospital and push for a MRI/ question why this has not been considered/done. From what you've said OP her condition is getting worse with the development of new red flag symptoms (night sweats, night pain, fatigue, loss of appetite), which is concerning and needs further investigation.

Don't stop pushing until you get answers and every serious diagnosis has been ruled out.

thoughtitwasright · 11/09/2026 22:35

A couple of years ago my 4 year old had a really bad case of strep and woke up with a limp about a month later. A&E said it was post viral reactive arthritis after doing scans. It took a couple of weeks to resolve but she was well otherwise, no temps etc. They took it very seriously when she couldn't bear any weight on the leg. I think they said it was caused by strep and also stomach illnesses like salmonella and c-diff if your daughter had anything like that?

I hope you get some answers and would agree you should continue to push for more tests if you have concerns.

OldTiredMum1976 · 11/09/2026 22:35

I would be pushing for second opinion tests to rule out leukaemia and an MRI to rule out sarcoma. The tiredness and night sweats are extremely concerning. You need to tell them this. Don’t let them fob you off.

NinaNina83 · 11/09/2026 22:49

You must be so worried, I’m so sorry. I’ve asked Chat GPT and here’s the advice:

Yes — I think your concern is justified, particularly because the new symptoms change the picture.
A 2½-year-old who has been limping for more than two weeks with no clear diagnosis deserves further assessment anyway. The fact that she is now waking from sleep screaming in pain and sweating is particularly important. The NHS specifically lists worsening symptoms and severe pain as reasons for urgent assessment, and paediatric guidance considers pain that wakes a child from sleep and night sweats to be red-flag symptoms.

In fact, guidance for children with a limp explicitly says to return to the paediatric emergency department if a child develops night pain or night sweats.

What concerns me about the threadIt's reassuring that she's had X-rays, bloods and ultrasounds that haven't shown something obvious. But normal initial investigations don't necessarily mean that there is nothing wrong.
For example, paediatric guidance notes that a normal X-ray does not exclude early osteomyelitis (bone infection), and inflammatory markers can sometimes be normal, particularly early on or with more chronic infection. MRI is often the preferred investigation when osteomyelitis is suspected.

There are also other possibilities besides infection: inflammatory/rheumatological conditions, an occult fracture or other bone problem, problems outside the hip itself, and much rarer causes such as malignancy. A limp can also be referred from somewhere other than the joint that appears to be affected. R
Royal Children's Hospital
I'm not saying this child has cancer. Childhood cancer is rare, and there are many much more common explanations for a limp. But persistent/unexplained bone pain in a child is specifically something NICE says warrants a very urgent full blood count, and unexplained bone pain/swelling can warrant urgent imaging. NICE also specifically says that persistent parental concern about a child's unexplained symptoms should be taken into account when deciding whether specialist assessment is needed.

What I would advise the mumGiven the new night-time screaming and sweating, I wouldn't advise her simply to wait for another GP appointment or another few days.
I'd suggest she takes her daughter back to a paediatric emergency department now/tonight, tells them explicitly:

  • limp has persisted for over two weeks andis getting worse she is now waking from sleep screaming with pain* * she is sweating during these episodes;
  • transient synovitis has been investigated and no hip effusion was found
  • she has had repeated attendances and investigations without an explanation her symptoms are progressing despite previous reassurance*. I'd also specifically ask whether she needs senior paediatric review and whether thepersistent symptoms warrant further imaging such as an MRI, or assessment by paediatric orthopaedics/rheumatology/infectious diseases depending on what they find. That's not asking for a particular diagnosis or scan; it's asking them to reconsider the differential now that the clinical picture has changed. And if she becomes unable to bear weight, develops a high temperature, looks seriously unwell, has uncontrolled/severe pain, orthere is any other acute deterioration, that makes the need for emergency assessment even stronger.

So, yes: I would take the new night pain and sweating seriously rather than being reassured by the previous normal tests. The fact thatshe has already been assessed several times doesn't make another assessment unnecessary— the symptoms have changed, which is precisely why she needs to be reassessed.

cloudbabies · 11/09/2026 22:50

W3e · 11/09/2026 20:34

The night sweats, limp, tired and lack of appetite are red flags. I'd be camping out in A&E.

God yes, this.

LegoInfestation · 12/09/2026 19:30

X-ray often doesn’t pick up on infection. When my DD had a bone infection, at first her infection markers were only slightly raised so we were sent home, I had to advocate extremely strongly to be taken seriously and get an MRI which then showed the infection. It was a little easier for us as my DD was older so could communicate exactly where the pain was.

My advice is to trust your maternal instincts. If you feel sure something is very wrong you go back. Go to a different hospital if need be.

I have had to advocate strongly for my DD at two highly respected major hospitals in this country to be taken seriously so try to hold your head up and do what is needed. Both said it was growing pains and with the second hospital they still said growing pains despite proven previous infection. Fight if you have to.

ForNattyAquaWasp · 12/09/2026 19:40

LegoInfestation · 12/09/2026 19:30

X-ray often doesn’t pick up on infection. When my DD had a bone infection, at first her infection markers were only slightly raised so we were sent home, I had to advocate extremely strongly to be taken seriously and get an MRI which then showed the infection. It was a little easier for us as my DD was older so could communicate exactly where the pain was.

My advice is to trust your maternal instincts. If you feel sure something is very wrong you go back. Go to a different hospital if need be.

I have had to advocate strongly for my DD at two highly respected major hospitals in this country to be taken seriously so try to hold your head up and do what is needed. Both said it was growing pains and with the second hospital they still said growing pains despite proven previous infection. Fight if you have to.

sorry they didn’t listen to you too! Hope little one is ok now? I’m going to go back to GP on Monday, they will most likely refer me back to a&e it’s just awful as my little one is traumatised from the constant blood tests. I may ask the GP her thoughts on MRI also.

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LegoInfestation · 12/09/2026 21:42

ForNattyAquaWasp · 12/09/2026 19:40

sorry they didn’t listen to you too! Hope little one is ok now? I’m going to go back to GP on Monday, they will most likely refer me back to a&e it’s just awful as my little one is traumatised from the constant blood tests. I may ask the GP her thoughts on MRI also.

She did recover thank you but it was a long haul.

How has your DD been today?

ForNattyAquaWasp · 12/09/2026 22:16

LegoInfestation · 12/09/2026 21:42

She did recover thank you but it was a long haul.

How has your DD been today?

Ah I’m so glad to hear that! She’s still limping, she’s still playing but saying she’s tired all day long. When at ballet she also cannot tip toe and the limp is way more prominent when she tries to. I think going back to GP on Monday is the best next step as of now. Also going to ask for her most recent blood test to see if I myself can see any slight change compared to the ones 5 days prior.

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W3e · 12/09/2026 22:30

ForNattyAquaWasp · 12/09/2026 22:16

Ah I’m so glad to hear that! She’s still limping, she’s still playing but saying she’s tired all day long. When at ballet she also cannot tip toe and the limp is way more prominent when she tries to. I think going back to GP on Monday is the best next step as of now. Also going to ask for her most recent blood test to see if I myself can see any slight change compared to the ones 5 days prior.

You need to go to A&E. The GP can't do anything.

ForNattyAquaWasp · 12/09/2026 22:41

W3e · 12/09/2026 22:30

You need to go to A&E. The GP can't do anything.

I need the blood test results anyways so I will be returning to gp first thing Monday but need an appointment to obtain them, my GP will most likely call the ON Call Paed at the hospital and I’m pretty sure we will be sent back to a&e. A&E policy won’t allow them to give me a copy.

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