Hello All
I am new to mumsnet.
I just wondered if anyone on here has Alport Syndrome or Thin Membrane Kidney Disease? My daughter has had constant blood in her urine for the past 18 months. The consultant said they needed to rule out the above conditions. My daughter has had the genetic blood test & we have a video call on Friday so I know she has either of these conditions otherwise they would have wrote to me. I just wondered how any of these conditions affected you or your children?
I am going out of my mind with worry