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My Daughter has infantile spasms on vigabatrin

4 replies

carajane96 · 10/01/2023 17:06

She is 6 months old and currently on vigabatrin, although it has fully stopped her spasms, I haven't had a smile from her in days, she is usually such a happy baby, laughing all the time but now she doesn't laugh or smile, doesn't want to play and is asleep most of the time....

Has this happened to anyone else's child? And if so what did you do?

OP posts:
paradyning · 10/01/2023 17:50

Yea that sounds normal
Please join UKIST on Fb for support

carajane96 · 10/01/2023 17:52

paradyning · 10/01/2023 17:50

Yea that sounds normal
Please join UKIST on Fb for support

Her personality has just disappeared, she doesn't even smile when her dad gets in from work..

Does it ever get better? It's like the lights are on but no one's home

OP posts:
paradyning · 10/01/2023 18:18

Yes. It is like a cloud is over them
Please join that Facebook group. Lots of us can help you

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