Mass on brain 4 month old baby

[eastview]

I don't even know where to start but I took my daughter (4 months) to the GP as she's done this flickering eye roll ever since she was born and they thought it was linked to reflux as did we but they referred us to a paediatrician just to be sure. They did an mri and eeg which showed seizures but found out yesterday that she has a 2cm mass on her brain. I am absolutely devastated and don't know where to go from here. They haven't given an indication as to what they think it is and we are just waiting to hear from them. All I'm thinking is the worst and I can't stop crying. I've been thinking about how I'm going to kill my self when my daughter dies. I feel hopeless and that I don't have the strength to do this. She is my only child and I tried for over 3 years to have her with miscarriages in between. They thought she was missing her cavum during pregnancy so that was traumatic too. I don't know what to do, I can't believe this is happening to us.

Hi Op - that sounds rather reassuring and organised going forward!
Bless your family and your gorgeous baby (who, I have to say, is not only a darling but a very well dressed one! xx)

Sounds super positive. Yay for your little girl. Total champion.

Cardiff is a renowned centre for neurosurgery. Our friends son got referred there from Northern England as they had the most experience in his condition. He was 7, he is now 24 and thriving.

Thinking of you OP.

That does sound positive!

Well done to you all getting through today. It sounds positive.
Xxxxx

That does sound very positive. It sounds like she is in the very best of hands now and things are looking brighter. The not knowing is just awful. Thinking of you and sending a most unmumsnetty virtual hug.

That sounds so reassuring op. I hope you can have a good nights sleep now and be ready to have a lovely day with your gorgeous girl tomorrow. Sending you both loads of love.

That’s so good to hear. I’m glad they were able to let you know that today and that your lovely girl was back to her cheeky self so soon after the anaesthetic.

Wow, what a lovely happy little girl! It sounds reassuring that they are taking these steps and that they seem positive. Hang in there!

@eastview Reading your update has brought proper tears to my eyes..Your dear little Pumpkin is such a sweetie...she seems such a good hearted cheerful little Girl. What a relief {so far, touch wood }..What an exhausting day for you all.

OP you are amazing - well done for getting though today I can't even begin to imagine how hard it must have been!

It all sounds incredibly positive and whilst we want our babas to be perfect and not have ANYTHING wrong with them, being told they don't think it's cancer is the best news in the world and must have brought you so much relief.

Hope you sleep a little easier tonight ❤️

That sounds really positive, hopefully you feel a bit calmer after what must have been a very stressful time. Your DD is so beautiful x

Thank you for your update, and thank goodness it sounds a lot more positive. Hope you are able to get some rest, and maybe worry a little less.
Sending strength and hope, that your beautiful baby daughter has the best care to make her well!

Thinking of you both OP. Thanks for the update 🌻

Well that does sound like a very reassuring update, thank you! Yes, it will continue to be horridly worrying, but you have a timeline and know what is happening in between, and a contact!

Well done for being the squeaky wheel, OP. Your little one is very lucky to have such a great mummy.

Phew! Hoping for even better news for you soon @eastview and wishing your LO a speedy recovery. ❤

That all sounds very positive. Thank you for the update. Thinking of you.

I’m so glad to hear you’re home and your DD got through the MRI well. That is really reassuring news - keeping you in my thoughts. Take care of yourself xx

That's good news OP very happy for you! They sound like they've been much more reassuring than the other hospital. It's a waiting game for the results but if they had needed to operate asap you would have been told and that doesn't sound like it's the case at all which is good. Glad your daughter sounds like she got over the effects of the anaesthesia quite quickly, bless her! Do those things you wanted to do, take her to a light show and get some normality back for you all. Wishing you all the very best for when the results come in, stay strong and don't forget to look after yourselves as well as your daughter.😘

So happy to read your update OP and still keeping all crossed from here. Your beautiful girl has a strong mama xx

Wow.what a come down you must be going though now.try sitting,taking it all down a notch and taking a few minutes tot breathe you way through the news.let it settle in.
you can do this.step by step.
try not to what if it spiral about what comes next.just Benin the moment.you don’t know anything right now so just carry on the best you can. Soak up all the snuggles you can.let her be as bright and smiley as ever.

Thank you for taking the time to update op.

I'm so glad you got straightforward answers to your questions and that there's nothing urgent needed at this stage.

I'm sure the wait for the response from the mdt will be hard but it's always good to have a steer and a plan.

So happy you have had some information and your beauty recovered from her MRI well. X

So pleased to see your update this morning. You and your beautiful girl have been on my mind. You should be so proud of persevering for your girl and pushing to be seen, you are a very strong woman. I'm so glad you got the best news you could get at this stage and that you are getting information and there is a plan in place.

Delighted about the update so relieved you can enjoy Christmas now yes still waiting but not the darkest time now loads of hugs.