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See all MNHQ comments on this thread

Mass on brain 4 month old baby

937 replies

eastview · 15/11/2022 11:03

I don't even know where to start but I took my daughter (4 months) to the GP as she's done this flickering eye roll ever since she was born and they thought it was linked to reflux as did we but they referred us to a paediatrician just to be sure. They did an mri and eeg which showed seizures but found out yesterday that she has a 2cm mass on her brain. I am absolutely devastated and don't know where to go from here. They haven't given an indication as to what they think it is and we are just waiting to hear from them. All I'm thinking is the worst and I can't stop crying. I've been thinking about how I'm going to kill my self when my daughter dies. I feel hopeless and that I don't have the strength to do this. She is my only child and I tried for over 3 years to have her with miscarriages in between. They thought she was missing her cavum during pregnancy so that was traumatic too. I don't know what to do, I can't believe this is happening to us.

OP posts:
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MolkosTeenageAngst · 21/11/2022 19:19

I’m so sorry. Thinking of you and hoping the outcome of the scan was as positive as it could be. Flowers

TulipCity · 21/11/2022 19:19

Thinking of you x

spuddel · 21/11/2022 19:24

What a gorgeous little baby girl. I am praying for the good news for you all.

Caroffee · 21/11/2022 19:30

She is so smiley and looks so happy. I hope today went as well as possible and that you got the best news in the circumstances XxxX

wobblymum1 · 21/11/2022 19:32

you are being immensely brave and an amazing mummy tiger 💞
I don’t work in paediatric neurology, but I work in paediatric social work for hospitals and can offer general advice and support with things like accommodation while you’re in hospital, liaising with hospital departments and chasing things up when you don’t have time or energy to do so…..feel free to PM me if I can help x

AuditAngel · 21/11/2022 19:33

There is a shortage of paediatric neurologists. My daughter collapsed with seizures and even going private it took 2.5 months from first seizure to neurology appointment. The good news for us was neurology on Monday, MRI Tuesday, EEG Wednesday. 5 days for report to be prepared, diagnosis following Wednesday, meds started Monday (delay was because we were away, the diagnosis appointment was via zoom)

we were seen in Central London, I am happy to pass on details in a PM, but I realise this isn’t local for you.

PartySuziPlease · 21/11/2022 19:35

Your little girl is absolutely beautiful. I hope today went well. I cant imagine how you are feeling. Sending you positive vibes xxx

Choconut · 21/11/2022 19:36

Wow OP, she is the sweetest most adorable little girl ever surely?! I really hope it's gone smoothly and things are going to move fast now. Everyone at hospital is just going to fall in love with her that's for sure.

Bellablahhole · 21/11/2022 19:42

Your little girl is beautiful, OP. That smile! Thinking of you all x

Allllllrightythen · 21/11/2022 19:43

Thinking of your beautiful little ray of sunshine and your family X

PurpleFlower1983 · 21/11/2022 19:43

Thinking of you and your beautiful girl xxx

Timetochangetheoil · 21/11/2022 19:48

What a precious baby girl, she really is beautiful. Thinking of you x

margatino · 21/11/2022 20:00

Thinking of you and your beautiful little girl ❤️

MCbadgelore · 21/11/2022 20:11

your daughter is beautiful.

Hope you got some positive news today.

I had a room at the Manchester Ron Mac House for 6 months while my daughter was in RMCH - that wouldn’t be a bad place to be if Cardiff aren’t suitable. Big paediatric neurology team and the supportive services are excellent

Flowers
niugboo · 21/11/2022 20:12

Thinking of you both x

Swapshopped · 21/11/2022 20:24

What a beautiful baby. Thinking of you x

Poppyrose22 · 21/11/2022 20:26

Thinking of you and your beautiful baby xxx

Dontputthemockersonmyshrivelledknockers · 21/11/2022 20:30

Thinking of you all ♥️

SunshineClouds1 · 21/11/2022 20:41

💖💖

StickyCricket · 21/11/2022 20:41

Hope you've been given lots of information and positive news today. Your daughter is absolutely beautiful!

Cakeandcoffee93 · 21/11/2022 20:43

Your girl is beautiful- I hope everything goes ok. X

Trudij123 · 21/11/2022 20:52

She’s so sweet - I really hope today went as well as it could and you get some answers soon.

Silverpossum · 21/11/2022 20:53

Have been thinking of you x

Elbieo · 21/11/2022 21:01

Thinking of you 💕

Xiomara22 · 21/11/2022 21:04

Thinking of you all 💕🙏🏻