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I am so worried about ds8 urgent paed referral

37 replies

Minimalme · 10/10/2022 11:06

My ds 8 has been vomiting on waking up 3/4 times a week for the past 6 weeks.

We often share a bed and he just leans over the side of our bed and brings up foamy stuff.

He has also been sick a few times late evening.

He looks thinner and we have noticed such a change in his behaviour. He gets very angry and we have had to exercise superhuman patience just to keep him calm.

We spoke to the GP a couple of weeks ago and he has got an urgent referral to see a paediatrician and blood tests tomorrow.

I don't know how long an urgent referral takes?

I am so worried. I am used to medical stuff and pretty level headed and calm but this just feels bad.

OP posts:
Are your children’s vaccines up to date?
BlackSwan · 14/10/2022 09:45

I wouldn't pretend DD had been concussed - just be straight but firm. It's hard to advocate for your child but you need to be firm in these situations and not take no for an answer.

Minimalme · 14/10/2022 12:39

Update - blood test results came back this morning via text from our GP. All normal except Bilirubin which is through the roof high Sad

GP receptionist said I couldn't speak to a GP until 21st Oct. I called the Childrens Ward and they said to bring him in.

I have googled liver symptoms and there is vomiting, fatigue, weight loss and confusion which is like a depressing form of healthcare bingo.

Will update when we know more.

OP posts:
Wibbli · 14/10/2022 12:52

Oh OP, how awful but well done for speaking with the ward. I hope he is OK - thinking of you and DS

Jasmineblossom24 · 15/10/2022 13:43

I hope your boy is ok OP.

LiveintheNow · 15/10/2022 13:53

Do ask for coeliac blood test as part of investigations, it is autoimmune and often found in families with other autoimmune conditions such as type 1 diabetes. It can also cause elevated liver test results.

MegCleary · 15/10/2022 14:01

www.nhs.uk/conditions/gilberts-syndrome/

might help

Untitledsquatboulder · 15/10/2022 14:52

Hand hold for you here if you need one OP. Good for you for advocating for your ds. Things will probably start happening quite quickly now and you should get answers very soon.

Dh and I are writing to our GP surgery to ask them to review their communication and training systems so that the delays that happened with our son don't happen to anyone else. Don't worry about that now but once your son is recovering, you might want to consider making a complaint or at least talking to them about how they prioritise appointments.

MarmiRae · 17/10/2022 10:30

Any update OP? Watching your thread and sending light and positivity to you and your darling DS

justmewithmylifetoday · 21/10/2022 21:49

How are things OP?

LeMoo · 21/10/2022 21:51

Fingers crossed for you op

BigBagOfPasta · 21/10/2022 21:53

This reply has been withdrawn

This message has been withdrawn at the poster's request

Fuckallthetories · 21/10/2022 22:14

Oh my love. Hope everything’s getting sorted xx

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