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Original poster

EDS Diagnosis and Support - teenager -East Midlands

3 replies

SleepWhenAmDead · 21/12/2021 08:03

DD has a long list of diagnoses which she has gathered over the years and nobody who ties it all up together.

More recently I had wondered if she had EDS but couldn't see a diagnostic pathway on the NHS and couldn't work out who to see privately. Please does anyone have any advice?

OP posts:
KoreyBay18 · 21/12/2021 08:06

No advice but I'm taking my DS(5) to the doctor today to speak to them about EDS so I'm here for support!

Overthebow · 21/12/2021 08:12

I have no advice but following as pretty sure I have EDS.

paradyning · 21/12/2021 20:57

Do you mean Ehlers-Danlos? Following... as pretty sure my dc has it too. They can bend their foot almost back to their shin amongst other issues

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