I have reason to believe my DC has PANDAS. They had a viral infection a few weeks ago and it felt like a new child emerged in their place once it was over. They've regressed so much in their speech and language, behaviour, physical skills and they've also mentioned words to indicate they're hallucinating (they're 3). I'd originally thought it may be ASD (that's how much they've changed since their illness) and have asked for a referral to the local children's development team but have just come across PANDAS and everything seems to fit. I've made an appointment to see my GP but don't want to be seen as the paranoid mum who'd originally suspected ASD and now this (research does suggest that many children with PANDAS are misdiagnosed with ASD/ADHD or other conditions) so I'm not completely off but how can I make a case for my child to be tested for a condition that still isn't widely understood in the UK?
I would appreciate any help/guidance from anyone who is familiar with PANDAS/PANS or who has gone down getting their DC or themselves tested for it.