Does anyone have experience? My DS has been discharged three years, it is a life long condition but no on going treatments so discharged. Very rare condition, needs to be reassessed now by GOSH and need their input to help with senior school. I am trying to get CCG to fund a direct referral rather than go through the months of waiting to see a local paediatricians at general hospital then eventual to GOSH. Last time it took 18months from GP referral to GOSH and the NHS was doing better back then.
any experience or advice please :)