My ds started taking baclofen 2 months ago. Started at 5mg x 4 and is now up to 10mg 4 times a day.
He says it makes him feel tired but was fine when he first started it and after we increased it was the end of that long term and then he got this awful bug.
I reduced it to 3 times a day for a week and have built up again. Being at school and more active means he really needs to keep the dosage up.
He still gets some spasm and we've been told he could have 60mg/day.
Does anyone know if the tiredness decreases? Does the body get use to it and is it worth the payoff for the reduction in pain in the long run?
I'm just looking for anyone who has had a child on baclofen or taken it themselves to give an insight. Ds has asd so his ability to describe it himself is limited.
Also has anyone or their child had surgery to lengthen tendons? Has it been suggested to continue baclofen afterwards?
TIA