After a stressful summer and test after test for 3 year old DS we finally seem to be narrowing down the path to figure out what's wrong with him.
He has low white blood cell count, and red blood cells (can't remember the official term), a raised rheumatoid factor (but no arthritic symptoms) and periods of severe lethargy. The GP was asking about family history of autoimmune diseases and has referred us urgently to a paediatric rheumatologist (appointment Monday).
We don't have a diagnosis yet and I'm trying not to do a Dr Google diagnosis
but in having a brief look at autoimmune diseases online, it all seems to refer adult women.
I'm just wondering if anyone has children with autoimmune diseases/ Lupus? And if you could share any experience with me?
It doesn't help that I suffer from pretty bad anxiety! 