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Anyone have any experience of a child with adrenal failure?

0 replies

daphnehoneybutt · 14/10/2014 07:54

Hello

DS was born almost a month ago. He has been diagnosed with a hormone deficiency meaning his body cannot produce cortisol as well as other hormones. What he has actially got is called mphd...

This, particularly the emergency aspect and needing to give him injections is scaring me. Currently learning how to give the injections / increase doses of hydrocortisone...

Just wondered if anyone was in same boat and could provide any advice / hand holding Thanks

The other medication he is on I am pretty cool with. Its just the adrenal crisis thing is terrifying to me, as there are potential fatal consequences.

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