Anyone with experience of Great Ormond Street Hospital's rehab programme?

[SasherinSuite]

I have previously posted about dd's condition here and she has now been
diagnosed with Chronic Regional Pain Syndrome. Following a referral at GOSH she will be admitted to their rehab programme this summer for 3 weeks. We have very little information on what happens other than it is a residential programme and either myself or my husband will be expected to stay with her. We should be receiving an information pack shortly but in the meantime does anyone have any experience of what happens so we can organise work/annual leave etc.

I've not heard of it at GOSH but I know someone who had rehab at Stanmore Orthopaedic hospital and it changed her life. She learned to manage her condition and have a better quality of life. I wish your DD the very best and I hope someone can helps you.

Thank you myfairyking. I have heard very good things about the treatment and the success rate is high. Just trying to find out as much as I can about the logistics of it all. Found some info on the hypermobility website but a lot of it was quite outdated.

My little girl was there in december its physio the team are brilliant my daughter came out a whole lot betta and enjoys goinf back for appointments with them ellie haggard is my daughters main physioist and she is brillian up there xx u will stay in hotel amd thats just as nice xx

how did you find gosh xx i.think they are soo good and patient with the children xx