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advice wanted on daily growth hormone injections

3 replies

growthhormone · 10/03/2013 21:59

DS is about to start on daily growth hormone injections. Does anyone have any experience of this and any advice?? Only just had confirmation of tests so am still in shock. Thanks

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tangledupinpoo · 10/03/2013 22:52

Poor you and your DS - I'm sure you must be in shock and the thought of nightly injections must be overwhelming. I don't have direct experience but do have a DS with a growth disorder which is often treated by GHT, and think it's worth you taking a look at the child growth foundation website. (Honest, I don't work for them!)

It is www.childgrowthfoundation.org It helps parents or anyone affected by many growth disorders. I think the forums may be a bit quiet there at the moment because they have a facebook page, but there's also a helpline and lots of information. It's really worth taking a look if there is not much traffic here tonight - or even if there is. There are lots of parents who have dealt with this and know loads about which device to choose etc etc. That forum (and organisation) was a lifesaver for me when my DS was first diagnosed.

AMumGoingMad · 11/03/2013 13:58

I can second the child growth foundation being brilliant. They have a very active FB page. Just search for them on FB and follow the instructions for joining. My child has a growth disorder and is just about to start hormone therapy but not growth hormone and I have found the fb page for the child growth foundation to be so supportive.

growthhormone · 12/03/2013 12:16

Yes I plan to join, thanks. Any one have experience of daily injections here?

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