son being sent into A&E to have tests done tomorrow morn .... very upset

[Elmofan]

My 14yr old has just been to the doctor and needs to have tests done to see if he has vasculitis . After searching Google (i know i know) i'm worried sick :(
Any one any advice or experience of this condition?

TIA

No experience but don't google anymore xxx

Oh your poor love. That sounds so scary.

Step away from google though. Or you'll scare yourself silly x

Oh honey. Step away from scary Google.

thank you all for being "here" for me today xxx I am busy packing bags for dd to go to my parents house tomorrow & for ds in case he has to stay in hospital for a few days . we've been advised to get ds to A&E Before 8.30am .... I will update a.s.a.p xx
Ds had blood tests done last October because gp thought he looked anemic , those tests came back normal ... Praying so hard right now that gp is wrong :(
xxxxx

Elmofan. My mum has a form of vasculitis. I don't know much about the whole group of diseases - only about her particular condition. I imagine it varies a lot from type to type. Her form is manageable and in fact she's been well for the past few years. It must be very worrying to be thinking about this for DS but I just wanted to reply to say that she's a lot better since diagnosis than before because she knows her signs and goes off to get treatment early. Hoping you get the news you want soon.

Thank You drjohnsonscat i am so sorry your mum has this horrible condition , i have scared myself rigid reading up on it online .. Thank you for replying x

I have been to see dr google myself on occasion! Really hope DS gets the all clear. DM was diagnosed in her 40s and though it's been a struggle she has been ok and learnt to manage it. She's in her 70s now so three decades on. But what you can cope with at 40 is not the same as what you should have to cope with as a young person. I do know though that treatment now is vastly better than it was back then. Hope for good news for you and DS.

Hi elmo hope all goes well today, update when you can x

Hope today went/is going ok x

Just home now but Still none the wiser . spent 5 hours in A&E , saw three different Doctors (one of them was a consultant) had xrays & blood tests & still don't know what's wrong with ds they don't think it's Vasculitis , They think it might be Rheumatoid Arthritis But because this is very rare in children they don't have any specialists in the children s hospital to look at ds . They Sent us home until they can request a specialist to see ds as an outpatient but this will take a good few weeks to arrange in the mean time they can not treat ds until he is diagnosed properly unless the condition worsens then i have to take him back to A&E straight away.