Hi,
Am posting in a few places as need some urgent advice.
My 21 week old DS2 iAs bottle fed, has had feeding issues since about 5 weeks. We are on ranitadine, doperidone, omeprazole and gaviscon. Have tried Nutramigen, Neocate, SMA Staydown and no difference.
Last month things got to tSXhe stage where he would scream after one suck so we syringe milk into him. Got home yesterday after 8 days in hospital with him being fed by NG tube. Came home with Infatrini and to start weaning. Only been home 24 hours and in that time he has probably cried for around 6 hours in total and only had 100mls of milk and 2 teaspoons of solids......
He is having a barium swallow on 24th but am at my wits end. I feEl like I'm going mad, the doctors were patronising as anything and just kept saying the reflux meds should work and they could see nothinG orgnaically wrong and the NG tube wasn't a solution. But there is something wrong, he screams in agony and it's getting worse.
I tink he needs to be back in hospital but I hate the thought, DS1 is only just 2 and found it very difficult with me being awa plus I missed him dreadfully.
Anyone had his, what else could it be and what can I do?