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Cancer

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Urgent referral to Head and Neck after colon cancer

61 replies

TerracottaWorrier · 23/09/2026 19:56

I had a bowel resection back in March. I was ill for a long time before they finally agreed to do a colonoscopy and very very sick. By the time the tumor was removed, it was T4. Involvement in the lymph nodes in the bowel with one rupture.

My recurrence risk is between 35-40%, with recurrence most likely in the first two years.

About a week ago I noticed a lump on my neck just above the collar bone. I had also noticed that I was getting fatigued again in a way I hadn't been for a while.

I went to the GP on Monday and she noted that it was a swollen lymph node, pretty big. She felt around the area and said she could feel more swollen nodes.

Yesterday, my CEA results from the 7th September came back and my level is raised. It was 3.6 in July and now it 5.1, which is higher than it was before the bowel resection when it was 4.6.

I've had an urgent referral to Head and Neck, which is still three weeks away.

I can't help but think the worst. I'm so sad. I have been trying so so hard to recover everything I lost from the first cancer, in terms of fitness. I used to be so fucking fit. Bouldering, cycling, advanced yoga.

This last week, I just want to lie down all the time again.

I'm back staying at my dad's since the surgery and I keep thinking I'm going to die in the same fucking hospital I was born in.

The lymph nodes have gotten bigger since I noticed them. I can feel multiple with my fingers now.

Fuck this shit, etc.

OP posts:
TerracottaWorrier · 29/09/2026 18:58

So I got the ultrasound this afternoon. He didn't say much apart from the fact that the nodes are very prominent. He said that due to my cancer history he wanted to biopsy them, so he did.

It was a bit miserable but survivable.

I guess I'll have the results in about ten days.

OP posts:
TheSpottedZebra · 29/09/2026 19:13

OK, so that's progress i guess? It's one step - a big step -towards knowing what's going on, and addressing if if needs be.

Have a virtual hug from a total stranger on the Internet! You've had a rocky few days xx

TerracottaWorrier · 29/09/2026 19:16

TheSpottedZebra · 29/09/2026 19:13

OK, so that's progress i guess? It's one step - a big step -towards knowing what's going on, and addressing if if needs be.

Have a virtual hug from a total stranger on the Internet! You've had a rocky few days xx

Thank you. 💖 Last time, I had a colonoscopy and when I woke up he basically went CANCER and then I went home so at least there wasn't any waiting/wondering.

They were very nice at the hospital today. I cannot fault them. And I was a very brave girl.

OP posts:
TheSpottedZebra · 29/09/2026 19:19

You WERE a brave girl, and you kicked arse getting seen quickly.
Honestly, reading your posts back, you've really been through it. It sounds really (extra) traumatic.

W0tnow · 29/09/2026 19:24

Lots of love to you. ❤️

Vicliz24 · 29/09/2026 19:30

Sending much love . So very glad you pushed to be seen sooner .

Newjobnewstartbooks · 29/09/2026 19:35

You are incredibly brave. Sending you loads of positive wishes and luck.

Shakethedisease · 29/09/2026 19:55

TerracottaWorrier · 29/09/2026 19:16

Thank you. 💖 Last time, I had a colonoscopy and when I woke up he basically went CANCER and then I went home so at least there wasn't any waiting/wondering.

They were very nice at the hospital today. I cannot fault them. And I was a very brave girl.

You were. You've been a warrior. Well done on getting yourself to this point. Can you treat yourself to something while you wait for the results?

TerracottaWorrier · 29/09/2026 20:31

Shakethedisease · 29/09/2026 19:55

You were. You've been a warrior. Well done on getting yourself to this point. Can you treat yourself to something while you wait for the results?

I was thinking of going to Covent Garden and buying a lot of Tom Ford perfume, honestly.

The Wellbeing coordinator at my GP referred me somewhere that might give me a massage, too.

A lot of places don't want to touch me because I've had cancer. Has that been the experience of anyone else? I didn't have chemo so I can't see why I can't have a facial but my usual salon won't see me any more.

OP posts:
Shakethedisease · 29/09/2026 22:06

I have seen, on occasion, spa places that will do treatments suitable for cancer patients. I'm not in London but it might be worth searching or asking AI about this and then seeing if you can find one that will confirm they'd see you?

And get the perfume. You deserve it.

StopGo · 30/09/2026 01:35

Biopsy done without delay so that’s good though brutal. Try not to worry but I know that’s not easy xx

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