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Infant feeding

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Tongue Tie Story - already cut 3 times and back again

28 replies

mrjaz · 24/02/2015 15:20

Thought I would share our Tongue Tie Story.

Our daughter was born at the end of October with a really bad Grade 1 Tongue Tie, it had a massive affect on her ability to drink and put on weight. The NHS in Swindon are just not interested in Tongue Ties and we would have had to wait 3 weeks to see an ENT Consultant, so as a result we went privately and the Tongue Tie was snipped by an Osteopath Louise Beland who is based just outside Oxford, who I must add has been absolutely fantastic throughout the whole experience.

As soon as the tongue had been snipped we saw a huge improvement in her feeding.

A couple of weeks later we returned for a follow up appointment and some more of the band was discovered and cut, things improved greatly and as a result we thought that our daughters tongue tie was completely solved.

Three weeks ago we returned for what we had hoped would be a final appointment and was really surprised to see that the tongue had returned. This time the tie was not flesh based but more scare tissue my wife’s family have a history of Keloids. We opted to have the tie cut away once more in the hope that it would not return. However, within the last few days our daughter has become very grumpy and it is painfully obvious to see that she is in a great deal of discomfort with her tongue.

Our Osteopath has refereed us to the Specialist in Southampton, who I thought would be really helpful. Sadly, after a long phone chat with him last night he has refused to even take a look at our daughter, as he feels that cutting it again will not do anything as the tie will probably just come back and he does not use laser, our Osteopath thinks that Laser should do the trick and destroy the tongue tie.

After spending many hours on the internet we have now made an appointment with Malcolm Levinkind in London to have the tie lasered in two weeks time, which will cost a cool £450.

Any thoughts or feedback would be very much appreciated.

It is difficult to put into words how frustrated we are with the NHS, from the start they have completely disinterested and despite many hours of research nodbody in the NHS will laser a tongue tie

OP posts:
natminkey · 10/11/2023 16:36

This is so long ago but just wondered if you had any updates on this baby? Did it resolve? I’m having same issue with my 9 month old, might need 3rd revision - symptoms for us are ooor weight gain, terrible gas/ constipation, little solids

mrjaz · 10/11/2023 21:02

Oh wow, thanks for making me feel really really old, cannot believe this was back in 2015.

Our ‘baby’ is now 9 and her biggest problem is keeping her tongue in her mouth as she talks so much.

If he is still going get your baby to see Malcolm Levenkind. He gets the job done.

He is insistent that you have to do exercises in your baby’s mouth after the procedure they are pretty brutal but they are what your baby needs and certainly not what they want .

Our issues were 8-9 years ago so I don’t really know how things have changed,

OP posts:
natminkey · 11/11/2023 15:48

Thanks so much for getting back to me, so helpful x

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