Hi everyone,I haven't been around for a bit but I just want to share this & hopefully prevent other family's suffering as we are.
On the morning of 1st September this year,I found my beautiful 22 year old daughter who was home from uni,on the floor in her bedroom.
She was already beyond help.
It's been horrendous,no answers or support from anywhere for many weeks.
We were only able to finally lay her to rest on Friday
2 weeks ago we found out she died from Sudden Arrythmogenic Death Syndrome.
Every week 12 Children or young Adults die from SADS.
That's 120 more sudden,preventable deaths of young people since my beautiful daughter Ashlee left us.
CRY (cardiac risk in the young ) hold screening clinics for all 14-35 year olds.
The NHS WONT test our children unless one has already died from the condition.
Too little,too late for us,but maybe not other family's.
#4ASHLEEđź’”
www.testmyheart.org.uk