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Behaviour/development

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9 Month Old I suspect Noonan Syndrome what next ? Anyone any experience?

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fatbottomgirl12 · 13/09/2018 15:04

Hi, just a bit of advice really. We have recently adopted a 9 month old. She is lovely and we adore her. She was a fairly low birth weight and is extremely slow to gain weight, she also has a large head in proportion with her body. (there are a lot of other physical characteristics that I think indicate Noonan). She is not hitting some of her milestone, so she can sit up on her own but will fall after a while. She won't roll on to her tummy, she can't pull herself up but does try. she isn't crawling or even trying. She has had some heart problems at birth and her chest is wide set with a deep in dent. We have an appointment in October with a pediatrician regarding her slow weight gain, do I mention it then ? Or do I push for something sooner ?

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