Quick summary.
I've had my suspicions that something was not quite right since ds (9 months next week) was about 5 months. It was one day he was sat in his bumb0 (which he hated) he kept shaking his head side to side. Then he started throwing his back and head back quite forcefully when holding him. He just would not sit still. He still won't sit upright in any chair (just slumps or gets upset) and can't sit unaided for more than a minute or so. He doesn't try to catch himself when he falls.
He just seems to hate sitting.
Then I noticed he was having these jerking movements and making strange movements with his hands etc.
Then some staring episodes.
He had an eeg to check for seizures (a 40 minute one) and that was clear.
So all I have so far is everyone telling me 'it's because he's a boy, he's jut aking his time etc) we don't have any more appointments scheduled and have pretty much been discharged.
But, now he is almost 9 months, nt sitting or even really trying to do much, I can't help this nagging feeling.
I've also noticed his hands are much of the time fisted. Not always but he tries to eat sticking his fist in his mouth whilt the other hand rests fisted too.
He can open his hands and pick things up though.
This is my 3rd child and not had any concerns with the others.
He had a fever this last week too and I noticed his startle reflex was really exaggerated. He kept jumping and jerking his limbs.
In the development report after they saw him the Dr wrote tat he had no righting reflexes and his tone seemed variable. He ygoes very stiff when picked up. Like he doesn't want to be cuddled or confined in any way.
Indon't know what to think. Everyone keeps saying he seems fine or it may be reflux or just that he is a boy (patronising?!)
I don't feel anyone is taking me seriously.
Ds was extremely ill at 4 weeks and in ICU for 10 days on a ventilator.
Other than that he has generally been well.
He smiles and is happy a lot f the time but can also seem vacant and unresponsive.