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Lichen sclerosis advice and sex

4 replies

Poppyseed71 · 26/01/2026 21:25

Just looking for reassurance how others cope. I’ve been diagnosed with LS about 3 years ago. Despite using the steroid cream it’s got worse. Sex is unbearable. I got to the GP and they say just increase the steroid cream.
im currently off sick from work because im so low. The pain is unbearable im not sleeping it’s speak now to my bottom.
im bedding the loo more and more and slightly incontinent as well.
only 50 and feel awful.
how do others cope ?
or had similar issues. GP seems not bothered and says I’m depressed. I think yes I am because of all this …….

OP posts:
PermanentTemporary · 26/01/2026 21:31

I’m really sorry you’re dealing with this. Bumping for more eyes to see it.

I’m assuming you’ve seen everything that can be googled but will just put this in lichensclerosusguide.org.uk

Lookingtodate · 26/01/2026 21:45

steroid cream caused me pain and we tried different ones. There is a ladies only facebook page which is so supportive

LuckyCharmz · 26/01/2026 22:04

I was going to suggest the fb group too.

Poppyseed71 · 27/01/2026 06:37

LuckyCharmz · 26/01/2026 22:04

I was going to suggest the fb group too.

What is the group called please

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