Suspected Coeliac 4 year old Help please

[Dawn1991]

Last year my daughter who was 3 at the time has had 2 positive tests for Endomysial IGA antibody and her TTG levels are 34.4k U/L so only slightly raised on both test which were 6 weeks apart. I’ve been to see the consultant today and they are saying she needs a endoscopy biopsy and I’m really worried about it as I've read people have had false positives on the blood test. Has anyone else had to go through this my anxiety is through the roof as she will need to be put under for the procedure!

Yeah it was fine. False positives for TTG test are very very low, false negatives are much higher. Sometimes a biopsy may be a false negative but it is the best way to hopefully be sure of a diagnosis. My DD had the biopsy at 4 and it was over quickly and she was absolutely fine. Lots of kids need to have an anaesthetic for all sort of medical issues. It's scary for us but also a common everyday occurrence.