Coeliac diagnosis

[Em3009]

Just wondered if anyone has been diagnosed recently and how long it took?

for reference I had bloods done on the 15th March, my Tissue Transglutaminase Antibodies came back at 111 and my IgA level also came back positive in line with coeliac - the doctor has referred me to gastro so it’s a waiting game but finding my symptoms are increasing.

any insight would be great! X

My son was diagnosed a year ago. He was positive on bloods and we were not put forwarded for biopsy perhaps due to his age. We went GF immediately. Are toot waiting on endoscopy?

@mangomaggie yes I believe so - the doctor said about an endoscopy but the letter I got from the hospital said I may or not be offered one! Confused x

My heptologust has just suggested that I may be coeliac, so just waiting for bloods. I have an endoscopy next week but that is for something else. So watching with interest

@Youmeanyouvelostyourkey have you had a long wait for this endoscopy?

No , not in this case. It started off as non urgent but they saw a polyp they want to investigate so it got upgraded under the 2 week rule. Otherwise it would have been longer

@Youmeanyouvelostyourkey hope all goes well for you x

The gastro will probably ask for a second blood test from you and if it's really high then they may give you a clinical diagnosis without needing endoscopy (this is what happened with my son 7 months ago), but if your levels are low - but still positive - they'll require an endoscopy to take biopsies. Unfortunately you must continue to eat gluten until all your tests are complete or it will alter your results.

@Realisation14 thank you - did you have a long wait for the gastro appointment?

About 3 weeks but we're in Northern Ireland and it was paediatrics gastro so probably not a decent indicator of how long you may wait. If you receive a letter from the dept I'd ring the secretary there and ask what the general length of wait is and even let them know you'd be willing to go on a cancellation list if they have one.

Also waiting for endoscopy here. Borderline bloods though so I'll definitely need the scope. No idea on waiting times, just a considerable wait is what I was told. Probably 1 year +. I personally have been very unwell so had to go gluten free & will eat it again in the run up to the endoscopy. Just means I can't accept a cancellation

If you are coeliac what’s the treatment?

@ExitPursuedByABare no gluten diet :)

Can I ask how long your blood tests took to come back? Nervously awaiting my sons results. Googling it says 1-2 weeks. Is that right? Xx

@Mummyspider27 my blood test was really quick - a couple of days but I’m still waiting to be seen by gastro, currently 11 weeks in! X

For anyone interested/ waiting for results I’ve just been diagnosed with Coeliac - took 15 weeks from referral!

That's great op that you now know for certain and can start your healing GF journey! It's not easy and is slow but you'll get there.