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Autoimmune disease

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Coeliac

5 replies

mummyl2013 · 12/03/2024 14:01

My son is 10 and has coeliac disease.
Since the day he was born I've had stomach issues on and off.
I've had multiple blood tests for coeliac always negative despite eating a gluten containing diet.
I had my second son 15 months ago and since then I have had low iron, low ferritin, low folate, vitamin b12 is very low end of normal.
My stomach is always feeling off and I'm always constipated.
I have heartburn every day.
In the evenings I look 6 months pregnant
One of my main symptoms is I have a itchy scalp and it will not go away I have tried every turn.
I think writing this down has just made me realise I need proper testing don't I 😭

OP posts:
Spencer0220 · 12/03/2024 14:04

You do. That sounds awful. I'm sorry.

I wasn't told I was coeliac until in hospital at 30 for something unrelated.

Your issues sound not dissimilar to mine.

mummyl2013 · 12/03/2024 14:10

Spencer0220 · 12/03/2024 14:04

You do. That sounds awful. I'm sorry.

I wasn't told I was coeliac until in hospital at 30 for something unrelated.

Your issues sound not dissimilar to mine.

How long have you been coeliac for? I have tried over the years to cut gluten out to see how I feel but I always end up cheating! I think a diagnosis is the only way I'd be able to take it seriously. I just hope the doctor will listen

OP posts:
Notmyjob007 · 12/03/2024 14:14

My MIL did not get diagnosed until she was 60. Itchy, flaky dry skin was one of her main symptoms.

virginqueen · 20/04/2024 17:41

Can you go to your doctor and ask for a test ? I seem to have all the symptoms and am feeling rough

Indicateyourintentions · 20/04/2024 17:49

There isn’t a magic pill if you are diagnosed, they tell you to stop eating gluten. That’s it. If you have it, your guts have a lifetime of damage to recover from. So go gluten free for three months and see if you feel better. And if you slip up and cheat don’t carry on cheating, look after yourself first.

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