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Autoimmune disease

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Should I seek medical advice or wait?

2 replies

Weathergirl007 · 14/04/2023 07:24

Morning All. Just looking for a bit of advice please? I developed a rare condition called Transverse Myelitis in Aug 2020 (c2 area) and was given IV steroids over 3 days. I had a lumbar puncture at the time and was advised 30% chance of developing MS. Restless legs have been off the scale this week and over the last day or so, my left arm feels weak and tingly. The abnormal sensation in my arm kept me awake last night. I also noticed earlier in the week hand weakness (I.e. not been able to open bottles and needing help). I’ve got my annual consultant appointment at the end of this month. Should I seek medical advice in the meantime?

OP posts:
Wc100423 · 14/04/2023 07:27

Ring the Consultants secretary and ask if you can get an earlier appt even if it is a telephone one before your physical one. Consultants secretaries are normally really lovely and will help as much as they can.

Myotis · 25/04/2023 06:18

Hi
did you get an appointment? My husband is in the hospital with TM just now so I know how worried you must be x

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