Crohns???

[Stacylouise14]

Hi all.

So for a while Iv been suffering with bad back bloating, low iron and pain ect.
The gp thought it was a gynae issue so requested a scan, my scan come back saying my ovary was rather large so my gp then requested an ovarian cancer blood test.
Whilst requesting this she asked about my bowels which I told her had been a little off but I was diagnosed with ibs 17 yrs ago so I just said I think it’s that playing up.
Anyway she said I think it’s wise to do a FIT test.
I done my bloods and the fit test and within 2 days she rings me saying my FIT results are high and I need an urgent colonoscopy under the 2 week cancer rule.
Day after a surgeon at the hospital rings and asks me all kinds of questions, he said my test was extremely high showing inflammation and bleeding from my insides and needs investigation.
I realized that these issues have been going on quite a while,
Severely constipated
Very dark black/brown stool (obviously blood)
Pain
Extremely weird loud embarrassing noises
Very Bloated
Feeling not empty/ sore bum
Extremely tired
Lots of mucus white/yellow/ orange
Unable to pass wind

I just put all these symptoms down to stress, low iron and ibs.

I had the colposcopy on the following Saturday and the prep was horrendous, I was violently sick and in a bad way. Anyway thank god all was ok and clear no cancer but they have requested I have an MRI of my small bowel as they suspect crohns this has been requested and I have an appt with a consultant again next week. No scan yet.

Sorry for the long winded post, has anyone had any of these symptoms with crohns??
The loud noises have been getting worse since May it’s like a haunted house in my tummy with dodgy pipes!!
I thought it would usually be diarrhea not constipation??

They have always said my low iron is due to my periods but now I’m wondering if it’s been this all a long.

Any help or advise welcome.

Thanks

@LoveFall

I guess I'm trying to be positive. I am sorry you all suffered. I can't remember much due to the sedation. I'm in Canada and they give midazolam and fentanyl I think, via an IV.

My sister lives in the US and the give propofol. I think they have nurse anesthetists to manage the general anesthetic. We don't have them and would need an anesthesiologist which would be expensive etc.
Like I said, they are no fun but worth it.

My GI doc says I need another one. In confess I am dragging my heels. Covid you know.

I do think we should try not to frighten people away from having one. Bowel cancer you know!

Oh Exactly I totally agree. Everyone deals with things different and have different experiences. it’s very short lived and something we have to do for our health. If I had to do it again then Of course I would.

Update - still waiting for my MRI from the colorectal surgeon but I had a lovely phone call with a rude Gastroenterologist yesterday telling me I need to just take lactose and the noises I hear all day long are due to constipation. He basically didn’t let me get a word in, he asked if I smoked 3 times which I told him no!
He said it seems like ibs to him because if it was crohns I would be very poorly!
I said I am poorly and I have been for a while. I’m not being fobbed off with IBS anyway he’s requesting an endoscopy. Anybody else just get fobbed off?!

@Stacylouise14

Update - still waiting for my MRI from the colorectal surgeon but I had a lovely phone call with a rude Gastroenterologist yesterday telling me I need to just take lactose and the noises I hear all day long are due to constipation. He basically didn’t let me get a word in, he asked if I smoked 3 times which I told him no! He said it seems like ibs to him because if it was crohns I would be very poorly! I said I am poorly and I have been for a while. I’m not being fobbed off with IBS anyway he’s requesting an endoscopy. Anybody else just get fobbed off?!

I'm sorry to hear that I think all of us with Crohn's will have been fobbed off with IBS at some point, usually for years. I'm sorry to hear a gastroenterologist tried this with you. Crohn's affects everyone differently. It probably took me so long to get a diagnosis because my only symptom was cramps. I never had any diarrhoea or any stool issues at all. The only way to know what is going on is through diagnostic tests, not via a description of symptoms. You have come this far so hopefully you might find out what's happening with an MRI.