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Anyone else anxiously waiting a rheumatology appointment?

5 replies

Artdecolover · 13/10/2021 20:30

Got my (private) appointment next week.
Loads of symptoms, recent + ANA bloods.
Had a + ANA 11 years ago and was referred to rheumatology and told "it's fibromyalgia, come back when you're worse"
Well, I'm worse :(
GP couldn't be less interested and pretty much dismissed my concerns.
Lots of other stuff going on too (having a mole removed next week)
Feel very lucky I can access a private appointment but very scared too...

OP posts:
Volterra · 23/10/2021 09:33

I’m just over a week away from my first appointment. I kind of ground to a halt at one point over the summer and had a load of swollen joints. Bloods were clear other than raised ESR.

Emjuyuert · 20/10/2022 03:51

How did you get on OP?

Volterra · 21/10/2022 09:27

I’m hoping the OP has been seen and is getting some help. I have just had a letter confirming a diagnosis of psoriatic arthritis from the second rheumatologist I saw. First was happy to decide it was osteoarthritis then I moved to a different area close to where an amazing rheumatologist practices and had my letter confirming diagnosis today.

Emjuyuert · 24/10/2022 21:18

Great that you have a diagnosis! ❤️I’m just trying to figure out what is going on with first consultant appointment tomorrow!

Volterra · 24/10/2022 21:22

Good luck. What symptoms are you having ?

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