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Autoimmune disease

Autoimmune liver Disease

8 replies

CambsAlways · 17/04/2020 19:13

Anyone got this

OP posts:
hells456 · 20/04/2020 13:40

I have Primary Biliary Cholangitis (PBC), that's one type of autoimmune liver disease but there are others.

BuffaloCauliflower · 20/04/2020 13:41

My mum does but is pretty covert about it so I’m not sure on details. I’d be interested to hear about others

UnholyStramash · 06/05/2020 03:19

Hand up. Grin I have AIC which nobody’s heard of, I’ll bet. It’s Autoimmune Cholangiopathy which is a rare overlap of 2 of the 3 main types of AILD. So I’m treated with immunosuppressants longterm for one (was previously on steroids but the disease has stabilised now so I was able to stop them), and I’m on a bile acid which helps with the other. I’ve read quite a lot about AILD and I’m a former nurse so I’ll try to answer any questions. AND as I’m shielding I have lots of time ....

UnholyStramash · 07/05/2020 20:45

@CambsAlways, just including your name so you know you’ve had a response. Smile

Techway · 21/05/2020 22:09

@hells456, same, been diagnosed 18 months and on Urso. What about you?

CambsAlways · 21/05/2020 22:37

I have autoimmune hepititis on pred and aza

OP posts:
hells456 · 21/05/2020 23:44

I was diagnosed at the end of December and I'm on Urso and various vitamins. I don't know if I need an add on yet because I'm still having a lot of testing. I'm struggling with fatigue and itching and terrified thinking of the future. How are you coping?

Techway · 22/05/2020 11:07

@hells456, the fatigue is the worst symptom for me and thankfully I don't have itching.

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