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Autoimmune disease

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Flip

Original poster

Anyone here have Antiphospholipid/Hughes syndrome?

7 replies

PoppyD93x · 06/04/2019 17:15

am about to be tested for Antiphospholipid syndrome because i have a history of blood clots (lung and brain).

Just wondered if anyone else has it or has been tested for it? Do you require medication? How does it affect your life?

OP posts:

DellaPorter · 15/04/2019 21:54

Yes, me. History of dvt, miscarriage. Am on warfarin for life.

Crushedvelvetcouch · 15/04/2019 21:55

My mum has it, also on warfarin for life.

Crushedvelvetcouch · 15/04/2019 21:57

Other than that she's fine, aged 63.
No further clots, touch wood.
Good luck with your results OP.

CherryPavlova · 15/04/2019 22:26

I just have aspirin initiated during pregnancy and heparin injections post partum. I have heparin before and after any surgery as well but otherwise just 75mg aspirin.

FuzzyPuffling · 28/04/2019 18:16

I'm being tested for it - no results yet.

Rosielee93 · 03/05/2019 12:35

Only just seen these replies.. ive had a name change since this. I've just been told i have it and the consultant wants to see me in next few weeks. Is warfarin definitely necessary? Really dont want to be on blood thinners for life.

DellaPorter · 12/05/2019 00:55

Depends if you have had a clot - in which case lifelong blood thinners likely. If you have only had pregnancy complications, then you may not require treatment outside of pregnancy

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