Mega cisterna magna & holes in heart

[gemaW]

I went for my 20wk scan yesterday and baby is growing fine, but they found that he has a mega cisterna magna 9.3mm and 4 holes in his heart. We wasn't really given any information or advice just that we needed to come back Tuesday for a scan with a cardiologist then sent on our way confused and scared. I'm so scared and have so many questions. I already lost a baby at 24wks due to placenta abruption and have had multiple miscarriages this baby really is my miracle. Has anyone had anything similar? I've googled and I can't really find any answers. I don't know how we're going to get through the next 3days we just keep breaking down

[Cantchoosename]

Hello, I am really sorry you are going through this. I don't have any experience of mega cisterna magna but I have had a baby born with a heart defect (which we found out about at the 20 week scan). I can remember feeling so anxious and overwhelmed. I know it is hard but try not to google, hopefully you will get some more detailed information when you see the cardiologist tomorrow. I will be thinking of you.

[Cantchoosename]

@gemaW how are you doing? I hope you are okay. No problem if you don't want to reply.

[gemaW]

Somewhat ok, baby's cisterna megna is fine on the higher end of normal but fine. Babies tummy is on the wrong side but not a problem. His heart is deformed. He only has one chamber instead of 4 there is a possibility of a small second chamber but he would not stay still for a proper look, there is a narrowing of the arch his missing some other parts of the heart. Habe 2 diagnosis's but they are not final till they cardiologist have had a second look if baby stays still. Diagnosis 1: univentricular heart of uncertain morphology diagnosis 2: unbalanced avds. Have to go back next Tuesday for another look and hopefully baby plays ball. Apparently very rare heart problem. Thank you for asking how I got on

[Cantchoosename]

I hope you get a final diagnosis next time you go. The waiting for answers is really hard and it is such alot information to process. I am here if you ever want to message me.