Mega cisterna magna & holes in heart

[gemaW]

I went for my 20wk scan yesterday and baby is growing fine, but they found that he has a mega cisterna magna 9.3mm and 4 holes in his heart. We wasn't really given any information or advice just that we needed to come back Tuesday for a scan with a cardiologist then sent on our way confused and scared. I'm so scared and have so many questions. I already lost a baby at 24wks due to placenta abruption and have had multiple miscarriages this baby really is my miracle. Has anyone had anything similar? I've googled and I can't really find any answers. I don't know how we're going to get through the next 3days we just keep breaking down

Hello, I am really sorry you are going through this. I don't have any experience of mega cisterna magna but I have had a baby born with a heart defect (which we found out about at the 20 week scan). I can remember feeling so anxious and overwhelmed. I know it is hard but try not to google, hopefully you will get some more detailed information when you see the cardiologist tomorrow. I will be thinking of you.

@gemaW how are you doing? I hope you are okay. No problem if you don't want to reply.

Somewhat ok, baby's cisterna megna is fine on the higher end of normal but fine. Babies tummy is on the wrong side but not a problem. His heart is deformed. He only has one chamber instead of 4 there is a possibility of a small second chamber but he would not stay still for a proper look, there is a narrowing of the arch his missing some other parts of the heart. Habe 2 diagnosis's but they are not final till they cardiologist have had a second look if baby stays still. Diagnosis 1: univentricular heart of uncertain morphology diagnosis 2: unbalanced avds. Have to go back next Tuesday for another look and hopefully baby plays ball. Apparently very rare heart problem. Thank you for asking how I got on

I hope you get a final diagnosis next time you go. The waiting for answers is really hard and it is such alot information to process. I am here if you ever want to message me.