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High risk Edwards/Patau

57 replies

NSx · 11/05/2022 18:29

Hi all,
I’m extremely worried as I received a call from my midwife today to say I was low risk for DS, but high risk for the other two <Edwards&Patau - 1 in 32.

when I asked what put me into high risk, she said it was my bloods(hormone levels), my Papp-a & HCG levels were off. Low and high I think.

I asked if anything was seen at my latest scan (13wks) and she said everything was normal NT was 1.8mm and all the babies measurements were normal.

I’m 34 years old with my first pregnancy. I’ve opted to do an amnio test next Friday (15+1) as she said NIPT is more accurate for DS rather than T13&18.

has anyone been in a similar situation? I’m freaking out and haven’t stopped crying.

x

OP posts:
NSx · 10/06/2022 08:25

Thank u so much it means a lot 🤍🤍

OP posts:
Lemoncake5 · 12/06/2022 04:04

I am so so sorry for your loss. I have just posted a long message in this forum board as well and face induction on Thursday. Its a shock for us too a part of me just wants it over and done with so i can move forward mentally and physically.

Traceyfudge77 · 12/06/2022 05:40

FlowersFlowers

NSx · 12/06/2022 08:14

Lemoncake5 · 12/06/2022 04:04

I am so so sorry for your loss. I have just posted a long message in this forum board as well and face induction on Thursday. Its a shock for us too a part of me just wants it over and done with so i can move forward mentally and physically.

I’m so sorry you’re going through this too. It’s honestly horrendous. I’m thinking of you, I know exactly how you feel, if you need someone to talk to, message me- I’m here for you 🤍

OP posts:
Bordesleyhills · 12/06/2022 08:23

So sorry I lost one of my twins 6 weeks ago to a heart issue caused by downs we think. High nt, fluid around the baby but we miscarried before amino. Really feel for you- edwards et al are dreadful

NSx · 17/06/2022 12:36

Life is cruel, and I’m so sorry to anyone who has lost their child due to these unforeseen issues and circumstances 🤍

OP posts:
Skyegoldie12 · 05/11/2022 17:13

Hi guys,

I am 26 and this is my first pregnancy after a miscarriage and after my 12 scan this week my screening test has come back with a 1:95 chance of my baby having Edwards/Patau syndrome.

I’m being reassured from the hospital that the scan is all looking ok with no markers and a NT of 1.70mm.

I have opted to have the NIPT to begin with and currently in a 10 day wait for the results.

Has anyone else had a similar experience as this?

I don’t know what to do with myself, i keep crying and very anxious.

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