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Original poster

Low Papp-a AND low HCG?!

41 replies

KTD27 · 04/05/2017 11:25

Oh ladies help me out,
I went for my 12 weeks scan last week at the hospital and had a horrid experience with the sonographer saying she couldn't see baby properly due to me having had my son a year ago 'and not being as slim as you once were' it was awful. And seemed bizarre as though I am not pre-pregnancy thin I'm not massive!
Anyway, we then went for a private scan yesterday and baby is gorgeous. NT measured 1.5 and all looked lovely.
Got my bloods back today and I'm really worried as my HCG and PAppA levels are low.
HCG comes back as 0.14 and PAppA as 0.26
All my risk levels are 'low risk' but should I be concerned about these levels? I don't see my dr til next week and am really worried

OP posts:
Original poster
KTD27 · 22/05/2017 14:50

Back from the hospital. We had another scan and they can't see anything wrong at all. So hard. Feels like torture. We have to wait longer for the karyotype results and then maybe for an amnio next week to confirm the diagnosis.

OP posts:
GreedyDuck · 22/05/2017 20:33

I'm so sorry KTD. It's such a bloody horrible situation to be in and the waiting is unbearable. You have been in my thoughts.

Original poster
KTD27 · 31/05/2017 12:25

I'm still here and still waiting. We went for an amnio on Friday but they couldn't do it as the membrane hadn't fused so it was dangerous for the baby. I was expecting the full karyotype yesterday and my consultant said any less than 100% and she would want an amnio to rule our confined placental mosaicism however no results came through. I waited by the phone all day and chased and chased.
I've rung again today and been told they'd be sent through today. I asked if I could have an amnio today regardless of the results and am still waiting for any sort of contact back. No results, no nothing.
It's a special form of torture and it's killing me slowly.

OP posts:
Original poster
KTD27 · 31/05/2017 18:06

So our results are in. 100% of cells and the consultant is of very little doubt that our baby has Edwards syndrome. Broken hearted.

OP posts:
Babykoala1 · 31/05/2017 18:32

I am so sorry to hear this update, I really was hoping for a different outcome for you. Flowers I hope you get the right care you need :( x

PrincipalCelestia · 31/05/2017 20:11

Really sorry to read your sad update
Flowers

SleepFreeZone · 31/05/2017 20:21

I'm so sorry KTD 😭

GreedyDuck · 31/05/2017 21:01

So sorry KTD. It's shit, toughest thing I've ever dealt with. Sending you lots of strength to get through this. X

LonelyCooler · 31/05/2017 21:09

So sorry for what your going through, stay strong x

Original poster
KTD27 · 06/06/2017 14:05

Final update of our story: Yesterday we said goodbye to our beautiful girl Sadie Rose.
It was a surreal and emotional day but we made the decision to have it done surgically and I'm already sure it was the right call for us.
Now we start to put one foot in front of the other and hope to heal in time.

OP posts:
SleepFreeZone · 06/06/2017 14:07

Bless you KTD. I'm so sorry for your loss 💐

bringonthesunn · 06/06/2017 19:27

So sorry for your loss x

SarahOoo · 06/06/2017 20:36

I am so sorry 😥

WhyTheHeckMe · 06/06/2017 21:05

So sorry to read this thread. Can't imagine what you're going through :-( xx

PrincipalCelestia · 07/06/2017 10:00

Have been thinking of you these past few days. So sorry to hear about the loss of your daughter.
You chose a beautiful name for her.
Take care Flowers

AncientOva · 07/06/2017 10:02

I've also been thinking of you. Beautiful names for your daughter. X

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