Psoriatic psoriasis pain

[Lyra87]

Have psoriatic psoriasis in my hands and arms. On biologics to treat it for 12 years.
Not sure what I'm looking for from this thread but I'm not even 40 and I'm struggling with basic tasks. If I didn't have my DD I'm not sure how I'd keep going. I want to cry thinking about how I'll be at 60. My mother died at 62 (had other complications but not psoriasis). Not sure ehay my aibu is but feel so helpless and defeated right now

Try the arthritis UK website forums for people who get it. Loads more Biologics have been NHS approved in the last 12 years so ask your rheumatologist if you can try another one.

Have a look at Aleppo Soap OP. It may help a little.

Do you mean psoriatic arthritis?

If your biologic is failing, you need to raise it with your rheumy team.

(this might be better posted on the autoimmune board, as it'll probably get lost on AIBU)

There are a few British psoriatic arthritis groups on Facebook, they’re great for support and helping with advice.
have you changed the biologic before? I’m currently on adulibmumab which hasn’t been much help, so my rheumy has changed my script to ustekinumab which I’ll be starting in a few weeks, I’m hoping for more success!! 🤞
I also bath everyday with hot water and usually Epsom salts (magnesium) which can help too. Have you seen the physio in the rheumy team, and occupational therapist, they can fit you for support gloves etc. the physio can help with what exercises to do, and not to do to help.
if you’re under the dermatologist then ask your GP for a referral to rheumy and see if they can help more

… oh and get your water bills capped if you use more water due to your disease. Mine was over £100 a month and they’ve halved it and capped it there

https://www.facebook.com/share/g/1F6f8KLJH2/?mibextid=wwXIfr

https://www.facebook.com/share/g/1A6rXbBcPZ/?mibextid=wwXIfr

I have no experience of this but my DP on biologics for RA.

I echo others, if you havnt already, contact your Rheuma team at the hospital.

DP was told that the same biologic often fails after a period of time (others have said 10-15 years) and that moving to another type is the next step (of course I appreciate this takes you in to that trial and error phase of having to be on it for 6 months before it’s judged effective).
Im sorry you feel so rough, it sounds exceedingly difficult.

I hope you can speak to someone in the dept soon.

good luck.

I would agree with going back to your rheumatologist if you haven’t already to discuss other options. I’ve been on biologics for around 15 years but I’m on my 4th (I think!) because they’ve all stopped working at different points.