I'm making this post as something has been bothering me for a while.
I've been watching uploads on social media of a granddaughter posting videos of her grandmother who is in late stages of dementia.
The videos are touching and very moving. They are raising awareness of dementia as they are recieving many views. The granddaughter who uploads them is also very informative and gives some excellent advice how to handle the disease.
I could go on and on about how positive the videos are.
The niggle I have is informed consent and how this works for the lady who is the centre of these weekly recordings.
She doesn't understand she's being filmed. She doesn't know thousands of people are watching her every week. She can not unconsent to any previous consent she has previously given.
How do others feel about this?
I do enjoy the videos and I like the granddaughter and how she interacts with her lovely, witty nan. I can see there is genuine love, hurt and care there.
I'm on the fence if I should stop watching these videos as it's wrong or not. Or to keep watching them as it's lovely and heart-warming to watch but sometimes makes me feel uncomfortable. It's greatly raising awareness of dementia and will definitely be helping care givers with the skills and support how to care for their loved ones with this cruel disease.