DS was born @ 33+5 weighing 4lb4oz. He is now 10 weeks and 8lb1oz
He was sent home on SMA prem milk. He was quite uncomfortable, he would never not be whinging/crying if he wasn’t asleep or feeding: and HV advised 2 weeks ago to try nutramigen as she suspects CMPA. GP didn’t even ask for symptoms, just went off HV say so for milk.
Started nutramigen, he seeemed much happier. We actually had a baby who would engage with us and seemed so much more content. He would go out in the pram Happy as anything. He would be able to be lied on his back without rolling around bringing his knees to his chest.
DS is weighed weekly by the SCBU outreach team due to being prem. last week he lost 100gram. This week he’s gained only 50grams. He has gone from about 20oz a day to 27oz a day… but only gained such a tiny amount.
The SCBU outreach team told us to return to the SMA milk to make him gain weight, they’ve never been convinced he has CMPA.
He has been back on the SMA milk for 3 days, and has been so uncomfortable in pain for hours today. It’s so heartbreaking to see.
The community outreach team told us to get the GP to prescribe a higher calorie milk…. But then said actually only a dietician can prescribe that. The GP prescribed anyway, turns out it had cows milk in so we can’t use that.
We spoke to GP again, who wasn’t really sure about anything. But prescribed us high calorie milk without cows milk, as I think we put a lot of pressure on. So hopefully we will have a comfortable boy who is also gaining weight.
I text the outreach team today to say he’s very uncomfortable on old milk, they just replied and said “go back to the allergen milk” but that doesn’t make sense cos he won’t gain any weight which is what the issue is.
The dietician referral will take weeks
AIBU to be so stressed that we are having to do all this chasing for this. I feel so unsupported by all healthcare professionals. We have been told so many times to “wait for dietician appointment”… how can I genuinely wait for 6 weeks for my 10 week old being in pain??? I’m at a loss. I 100000% understand the pressures of these departments… but we could get it sorted in a phone call…. Me & DP are constantly researching things and are quite rightly concerned about DS weight loss. But it seems like nothing will get done until situation reaches crisis??????