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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if anyone has experience with - Sagittal Synostosis/Craniosynostosis

27 replies

Tiggytigert · 18/07/2020 23:49

Bit of back story -

My daughter is 7 months - she has always had a huge head, like, 90-98th centile big.

Also, always been a funny, bumpy shape.

Im anxious from searching after seeing recent pic - attached (I have others of birds eye view also) - that she has something, maybe more sinister with her head shape due to this.

Please note, that's not a big bump on her head, that is just her head shape! She also has slight bumps above her ears, misaligned ears, a slighty flat edge to the left top side of her head also.

Has anyone got any experience, seen anything like this, words of wisdom or help put my mind at ease? Literally, anything. I'm so worried about it and feel awful I left it this long if it is something to be worried svout and needs surgery!

She is hitting all development milestones for her age, some for 9 months, she is also 90-95th centile for her weight and 75-80th for length.

To ask if anyone has experience with - Sagittal Synostosis/Craniosynostosis
OP posts:
HarrisMcCoo · 12/05/2021 20:52

I know it's an old thread but just wanted to say if you are worried OP please do ask for help and support from Headlines charity

HarrisMcCoo · 12/05/2021 20:54

Sorry my message got cut short! My youngest was born prematurely, diagnosed at 9 months with metopic craniosynostosis.

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