To have a sit in at my appointment on Tuesday?

[directline]

and demand that something really has to be done as I have quite honestly had enough!

Basically had a minor op on my bladder 8wks ago. Since then I have suffered several infections, being cathetered not only the normal way but have had to self catheter and now have a catheter coming out of my tummy also I have had 2 extra minor ops,7 nights in hospital and I still cant bloody pee when Im meant too. Although things are beginning to happen just not at convenient times! I also feel I have to go to the loo every 20 mins.

I feel I am being pushed from pillar to post and although the lady who I will be seeing on Tues is a real sweetie and I do trust her, I am just getting fed up and to top it all we go on a holiday of a lifetime 3wks today!

Can understand why you would feel as you do but tbh all a sit in would achieve is for someone (or many someones) with equal needs to miss their apopintments too.

be calm and clear that you can't take any mroe, and if you don't get the answers you need ask to be referred elsewhere.

Thats true, hadnt thought about other people, mind you probably to scared to carry it out anyway. Sometimes I just wish I was a young child so I could just stamp my feet and scream "its not fair".

Ah I know how you feel, we have kids with Sn and one is being abdly treated by the LEA at the oment, have debated camping on their lawn until they sort it but woudlnt dare in relaity .

Have youa sked for details of any support groups?

here would this help?

Well I was given a incontinence nurse but never saw her because I had the suprepubic catheter put in, she passed me on to the District Nurse who came 3 times and now shes not visiting until sometime in September!!!!!

thanks for that, I shall sit and read.