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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask you what your early symptoms were? (MS)

27 replies

Hissinggoose · 25/03/2019 20:51

Long and boring story short, I was diagnosed with ME/CFS about a decade ago. Last year I noticed a dramatic change in my fatigue levels, and had a bit of a relapse, resulting in time off work. Things didn’t improve brilliantly, but enough that I could carry on with life & get back to my job - I went to my GP in the summer with concerns about my symptoms worsening (increased fatigue, brain fog, clumsiness & migraines). My GP had blood tests done, which came back as very low vitamin D, and that was it - take vitamin D at high levels, and that’ll solve things.

Well, it hasn’t. If anything, things are worse now - I’ve been off work for several weeks now (though am desperate to get back because whilst still exhausted I’m bored stiff!) due to fatigue. My brain fog has turned into full-on aphasia some days which is distressing when I forget basic things, or can’t process basic questions from my fiancé like ‘what would you like for dinner?’, and I’m getting daily numbness & tingling in my legs & hands. WIBU to ask you what your early symptoms were, and if I should push for my GP to have this investigated instead of fobbing me off with low vitamin levels like last year (though I feel guilty having seen her quite regularly recently with the current time off, I always feel like I’m wasting their timeBlush)?

OP posts:
Lozz22 · 02/12/2019 23:58

Low Vit B causes these symptoms too. My body was very low in it during the 6 years I was vegetarian. I do also have hemiplegic migraines which also cause a lot of the symptoms but don't have any lesions on my brain to indicate ms. Since I've started eating meat it's not as bad but I still can't get out of bed in a morning without millions of pins and needles in the soles of my feet

davidwisnerrr · 17/08/2023 10:36

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