.... To feel sorry for myself and DS

[babbafishbabe]

Got out of hospital now Wednesday ... Had pneumonia. Given 6 days of IV antibiotic ... Not given antibiotic on discharge as they give him diaorreah and then his bottom breaks down. ( he has EDS SO PAPER THIN SKIN) and we need oromorph just to change a nappy. (DS IS 7 next week but severely disabled )
More seizures and just not himself ... Take him to GP Whi says he had ear infection ... Gives oral AntiB's ....

Arrrggghhhhhhh

Don't know what to say except you must feel so frustrated and exhausted and be hurting for your son.

What is EDS?

No, YANBU! You poor things, it all sounds painful and like you've suffered enough! Hope DS starts to feel better - hope he sleeps well and you can relax a bit

for you. Must be very hard x

Poor kid.... Poor you..., so sorry that you are going through this? Have you got a care package at home? Sounds like you need support and a lot of it. I hope things get better soon.