not means tested at all. its to do with how much care your child needs during the day and night. as a child with moderate/severe eczerma needs help at night (changing blood soaked sheets, applying creams/adjusting wet wraps or as in my dd's cases cool baths as the itch wont go away) u can claim DLA (disability living allowence).
if you get middle or high rate care awarded then ucan also try claiming carers allowence.
my dd's each get over £200 a month.