Like coeliac but not coeliac

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Two of my children are diagnosed with coeliac. I’ve been tested twice but both bloods have come back negative.

I’ve always struggled with eczema but when I eat gluten or wheat I feel breathless, I get a rash on my chest, my nose runs, my eyes feel sore and my fingers swell, then burn and itch. I have low Vitamin D. GP has been hugely unhelpful. Could this be a wheat or gluten allergy?

Try going GF for 6 months and see if you feel better?

I think the blood test only shows a positive for coeliac if you have been eating gluten for at least six weeks, and a 'normal' quantity. Maybe your tests have come back negative if you are unable to eat it?

That sounds more like a potential wheat allergy, I'd suggest requesting a referral to an allergy clinic. And avoid wheat while you're waiting, allergy testing does not require you to be eating/using the suspected trigger.

There is some evidence that people are allergic or intolerant to types of sugars found in foods - including wheat. So often people think they are gluten intolerant but it might be this. Worth looking into OP, if you are negative to coeliac.

www.monashfodmap.com/about-fodmap-and-ibs/