Sickness and diarrhea on neocate. Any ideas?

[Katie10001]

My baby is 5 months old. He has never settled. He has suspected cows milk allergy and reflux but I'm concerned there is something else at play. We have tried every medicine and milk. He is now on Neocate and milk thickener. He is on 20mg omeprazole for reflux. Overall there has been some improvement ( he no longer screams ALL day). However, he's still unsettled and has regular screaming fits followed by sickness and diarrhea, at which point he then settles for a while. We tried weaning him early - made no difference.

If he still has these symptoms with this milk/medicine, then surely there must be something else wrong? My consultant says he doesn't have the symptoms to indicate something structurally wrong with his stomach. Is this just something that happens with some babies? He is gaining weight well so clearly there is nothing life threatening but his quality and life is awful - as is mine. Anyone else experienced this?

Thanks

Katie

Wow, you poor thing. I really feel for you. Firstly, what do you use to thicken the Neocate? Carobel? Could he be intolerant to something in that? How long has he been on Neocate for?

Which consultant are you seeing for this? Is he/she a Paediatric Gastroenterologist, or just a general paediatrician?

Also, as a side note, I have eight tins of Neocate left (my son has grown out of his cmpi now and is established on cows milk). Would you (or anyone else) like it? It is all in sealed containers and within expiry date. I am in South West London but could possibly arrange delivery.

Sorry he's having a rough time. Are you still giving him solids? If so what is he having?

DS is allergic to dairy & soy and was diagnosed at 8 weeks. He still reacted on and off to something and I realised much later he was also allergic to eggs.

My guess would be it's either not been long enough on the neocate or he is eating something he's reacting to. FWIW Ranitadine and Omeprazole helped but didn't stop the reflux. Cutting eggs out did though.

Ds2 did not suit neocate at all, violent reflux for the first 2 and a half years of his life (after the first 6 months of exclusive breastfeeding, where he's was fine). I ended up breastfeeding until 13 months, but due to returning to work, couldn't carry on after that, but the vomiting go worse as we tried to give more neocate. It was hell. At 2.5 years, we decided to just stop with the neocate, despite the dietician insisting he needed it (severely underweight due to constant vomiting) and she insisted the neocate couldn't be causing the reflux. However, when we stopped with neocate, his reflux stopped within a week. Within 2 weeks, he ate voluntarily - something he'd never done before. I know your baby is too young to stop neocate, but do go back and ask to try other products. There may be something that suits your lo better.

@Katie10001 hi Katie this is very similar to my baby did you find a solution xx