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Allergies and intolerances

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Original poster

will ds really refuse dairy free formula like hv said?

49 replies

ariane5 · 22/04/2013 21:40

Ds2 was 1 last week.

He has cmp/egg allergy. Waiting for an appt to get a dairy free milk prescribed. HV previously had said try aptamil pepti as its the nicest and hopefully he will not react to it or will need diff formula.

Got him weighed and saw her today and she said he will prob completely refuse the dairy free formula when we try it as he is too old?

Surely that's rubbish-babies try new foods/drinks all the time, some they like some they don't?? Ds1 had neocate from 5mths and dd2 neocate from 7mths then changed to alpro 1+ at 18 mths old no problem.

Up untill now he has been bf and had a small amount of alpro but too much upset his tummy so we stopped giving it.

Does anybody have any experience of introducing dairy free formula to a 1 year old or is it same as for younger babies? I really thought that when we got some he would try it and gradually get used to it but hv seemed sure that he won't like it??

OP posts:
Freddiemisagreatshag · 22/04/2013 21:42

They are foul, as I said today on another thread, although Pepti is the least worst option taste wise.

My friend's son has PKU and was on it from birth and they still had to flavour it

Wheresmycaffeinedrip · 22/04/2013 21:44

Could he not just go onto KOKO /KarA coconut milk or an almond milk of something?

thereinmadnesslies · 22/04/2013 21:45

We tried introducing Neocate when DS was around 10m, he'd been BF until then. He never took to it and I've ended up extended breastfeeding.

He was ok with Neocate in food though, so I found it useful for cereal rather than expressing. At around 18m we started using Oatly oak milk instead, and DS will drink it flavoured with Nesquik.

Wheresmycaffeinedrip · 22/04/2013 21:47

Aptamil pepti is foul I found the only way dd would take it was to make sure it was really really warm.

OpheliasWeepingWillow · 22/04/2013 21:49

Unfortunately my dd won't touch Neocate and isn't good on food so she has to be tube fed Shock

Neocate is vile. We tried Nesquik, Golden Syrup... Everything first

OpheliasWeepingWillow · 22/04/2013 21:50

Sorry we transitioned to Neocate at 1yr

JedwardScissorhands · 22/04/2013 21:51

What about goat or buffalo milk? My CMP intolerant DS drinks buffalo milk.

TiredFeet · 22/04/2013 21:53

It seems very unhelpful of the health visitor to be so negative, did she not give you any solutions! I hope you find something that works. (DS is a neocate drinker and I remember the fear he wouldn't take to it, luckily he was only 6 months when diagnosed.)

Runningblue · 22/04/2013 21:57

Hv is being a bit simplistic. The taste of the hypoallergenic formulas like neocate are pretty foul, but as long as you do as slow an introduction as you can manage, youve a better chance of getting the baby on to it.
I was weaning from breast mik to neocate so i pumped off milk. I then fed the baby with a ratio of 1:7 neocate to breast milk, then we he was happy with that 2:6, then 3:5 etc
We did it this carefully because we first tried to just give ds a straight bottle of neocate and he was repulsed, put him off bottles full stop! So we resolved to do it slowly and the patient method paid off....

trixymalixy · 22/04/2013 22:00

It is vile. DS wouldn't touch it and he was 6 months when we first tried. I just kept bfing in the end.

I know that people have had success with mixing it with Nesquick.

Runningblue · 22/04/2013 22:02

Ps we saw a dietician about ds's milk allergy. At some point over a year , she was happy we were findimg other sources of calcium for ds's diet, so we werent reliant on him drinking neocate(he was going off drinking lots of milk)
She was keen we gave readibrek for breakfast as it is fortified, and she was impressed with the oatly vitamin enriched milk.
Oatly is nice to drink, and is easy to cook with. The oatly cream is also good for puddings sauces etc.
Just a cautionary note that milk allergy babies are often a bit iffy with soya - ds was.

thereinmadnesslies · 22/04/2013 22:03

Jedward - sorry to thread high jack, but is Buffalo milk ok for CMPI? What does it taste like? And where do you get it from?

Locketjuice · 22/04/2013 22:06

My son was about 9 months I think? He took to it fine Smile

cece · 22/04/2013 22:08

DS2 was prescribed Neutramigen. He was bf and never really took to it although he would have it in food. In the end I bf him till 20 months.

Original poster
ariane5 · 22/04/2013 22:54

I would prefer ds2 to have a formula like pepti/neocate as I know it has everything in it as far as vitamins etc. Ds1 especially had problems with weight (and at 6 y o is still on neocate advance) and ds2 is very small like him. Ds1 had neocate from 5 mths though.

He did like the koko we tried a little bit at the weekend but I want to make sure he is still getting all the nutrients he needs as he is a very poor eater.

I'm surprised at HV, I can't imagine her saying that a 1 year old would refuse a new food so why would she assume he will refuse a different milk? I really want to just use it in porridge etc and 1 feed a day and if he has to be looked after by someone else.

OP posts:
Wheresmycaffeinedrip · 22/04/2013 22:59

All you can do is give it a go. Perhaps try after a bf so he's not starving and distressed.

Wheresmycaffeinedrip · 22/04/2013 23:02

HV I would say really don't have any idea what babies will or won't drink. I swear they believe they live off milk shake and chicken nuggets. All babies are different but all need the chance to try new things. He may or may not take it. Unless she's a qualified psychic she doesn't know !! :)

narmada · 22/04/2013 23:02

I am sorry to say that your HV might have a point. Neocate is not just meh, it really does not taste like a foodstuff. IME pepti is better tasting.

We tried intriducing Neocate at about 4 months. Not a chance. Not even with nesquik, sugar, very gradual weaning etc.

Having said all this some kids take it no problem. It's got to be worth a try...

Original poster
ariane5 · 22/04/2013 23:07

I just can't believe how easy it was with dd1 (only one of 4 dcs without milk/egg allergy)! I really took it for granted!

For now till I get a formula for ds2 the koko seems a good option for porridge as alpro 1+ seemed to be slightly affecting him. I am hoping he will be ok with pepti as he seems more like dd2 than ds1 (who has a v severe allergy) so I'm hoping the pepti will be tolerated and it will give me hope that he will grow out of it. Dd2 seems to be improving but ds1 not at all.

I really need a rest from bf too, due to his food problems he feeds so much and I'm exhausted so if I could replace just 1 feed a day itd be a big help.Just really a bit fed up the HV was so negative.

OP posts:
AprilFoolishness · 22/04/2013 23:08

Its pretty horrid, and DS clearly preferred his sisters non-dairy free milk when he stole her bottle, but he has nicely transitioned onto Lactofree milk by as his intolerances got less severe, whilst she (both 18mo) now refuses all milk including super fresh creamy full fat loveliness! Argh!

mumat39 · 22/04/2013 23:21

We did what Runningblue suggested above, but we increased the formula by a spoon a day so by day 7 it was 7 ounces of the formula.

Dd and DS were put onto nutramigen, which is also vile smelling stuff and they would only have it in a bottle and wouldn't have it in food or on food.

We tried moving them both onto Kara which they really liked when they were a bit older, but they both initially got constipated and then had diarrhoea on it. The GP and dietician thought it might be to do with the sugar fructose.

The gp advised us o go back to nutramigen again, which we did one spoon at a time and again by day 7 they were back onto it. At this stage dd was 3.5 and DS was 1.5 years old.

Good luck.

Wheresmycaffeinedrip · 22/04/2013 23:24

Would it help do you think to try boost the fat/calorie content if what he does it? Oatly do a cream, could be good for stiring into mashed potatoor porridge if he eats that? Fat could help him feel a bit fuller and reduce his need to feed so much.

mumat39 · 22/04/2013 23:24

I think at one point we might have done half a spoon swapped for half an ounce too. Hope it works for your little one.

golemmings · 22/04/2013 23:30

DS went on to neocate at 11mo and never had a problem with it. He has it on cereal, as a drink, in custard...

Mind you, DS doesn't have a problem with anything (except dairy); he just eats!

JedwardScissorhands · 23/04/2013 07:11

thereinmadness buffalo milk can be ok for CMPI. Our Sainsburys has it. Quite expensive (£1.99 for 750 mls) but worth it.

OP could you not just buy a vitamin supplement? Neocate etc are vile.