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Small rant and need support

8 replies

Chiponshoulder · 21/09/2026 22:31

I have an illness that can affect many parts of the body.I also have quite bad MH and autism. There is a scan every 5 years so need new referral by GP. I am already at the hospital for other things but they won’t internally referral.

I managed to do online appointment request what I needed and who I already see. Response - the GP has looked at this and notes that I was already under the service - GP meant other specialist

wrote again - apologised I was not clear set it all out again. Got response - the gp has looked at you request, you have already been referred and gave the details of the other specialist for completely different part of the body. (Neurology for my epilepsy I need a lung scan!)

I’m crying 😢 It’s so hard keeping everything together with different illnesses. I thought I was so clear.
It may seem pathetic but I’m i don’t have real life support. It’s big when I manage to contact beyond regular repeat prescriptions so proud I did it but feeling low. I think I’ll try the hospital.

edited to try to explain clearll lol y - thanks it you read

OP posts:
Whoddathoughtit · 22/09/2026 03:05

Aww OP, I don’t have any advice im afraid but didn’t want to read and run. That sounds very hard for you.
maybe try PALS for some extra support?

Chickadee26 · 22/09/2026 03:56

I'm so sorry. I also have epilepsy as well as other chronic conditions and it is exhausting.

Chiponshoulder · 22/09/2026 05:00

Thank you both. Since my GP is so insistent I might try contacting the hospital

OP posts:
LivingTheDreamish · 22/09/2026 05:11

That sounds so incredibly frustrating OP. Sometimes you just end up in an endless loop with people because they apparently can't read.

Can you bear to email them one more time but be very blunt? That might get the message through!

fumingrightnow1 · 22/09/2026 05:13

Call the surgery and ask to speak to the practice manager and explain it clearly to them. Messages can get muddled easily

Chiponshoulder · 23/09/2026 19:47

thank you all really helpful knowing people are there.

I got the direct line for the respiratory service and sent that to the GP if they need to check I’m not a patient- the hospital teams have been great.

This whole thing is getting me angry, they have wasted so much of their time on this. I thought they want proof of needing the scan to justify referral. Some GP will have looked at this three times! A not urgent appointment is weeks ahead due to how busy they are (and the ones I’ve seen genuinely are that busy - one called me past 6pm with an urgent test result they’d only just had a chance to look at. )

I did think about contacting the practice manager but i worry about complaining when I won’t be able to change practice.

OP posts:
LivingTheDreamish · 23/09/2026 22:03

I think calling the practice manager is an excellent idea. You don't have to complain, just explain what happened and that you need their help. It is literally their job and if they get the hump then that's on them. Your health is important and this needs sorting out. I'm glad the hospital are being helpful so at least that's something!

Elieza · 23/09/2026 22:21

practice manager would be my suggestion too.

i’d tell her the facts, you need a five year scan of (x part of the body), youve written a few times, gp seems to think you mean the scans for (y part of the body) but its not, it’s x youre needing and can she help or get the message to the gp please.

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