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Ongoing fatigue and gastrointestinal issues with no clear diagnosis

28 replies

molly5678 · 12/06/2026 18:17

I wonder if anyone can give me some advice
For years I’ve suffered on and off with malaise and fatigue with gastrointestinal issues
I’ve had so many tests but the only result that’s a bit off is my serum ferritin which is in the 20s
I seem to be getting worse and have less and less ‘good’ days…on a good day I can exercise, socialise and function but on a bad day everything is an effort and I’m dragging myself through the day and have to cancel plans
my latest trip to the GP ended with some blood tests for auto immune issue but the GP said that if the results are negative then they don’t really know what is wrong with me apart from the possibility of mild chronic fatigue but he also seemed to think it was unlikely as ‘you aren’t bed bound or housebound and can work’
I’m just at a loss of never knowing how I’ll feel day to day

OP posts:
Tryonemoretime · 16/06/2026 14:20

pastabest · 12/06/2026 18:37

Is the autoimmune test a test for Coeliac Disease? Because what you are describing sounds exactly like the symptoms of Coeliac Disease

Yes. Was almost permanently exhausted with gastric problems until diagnosed coeliac.

molly5678 · 16/06/2026 20:32

Thanks all
I’ve been tested for B12 and coeliac which were both fine
also had stool tests before which were also clear
at one point Crohns was suspected but was ruled out
so IBS seems to be a diagnosis by ruling out anything else
I do wonder what is causing the low ferritin as I haven’t had periods for 6 months ( I was prescribed Ryeqo)

OP posts:
whatwasthatnoise · 16/06/2026 21:41

What's up with my gut is a website produced by all the big gut charities to help people like yourself get to the bottom of your symptoms and help you get a diagnosis.

Have you just had one test for coeliac disease? I have heard of many people have negative blood tests but positive biopsy at endoscopy to confirm coeliac disease.

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