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Sphincter of Oddi dysfunction diagnosis advice

29 replies

OrlandointheWilderness · 28/12/2025 13:34

Hey guys, looking for any advice on how to possibly get referrals/diagnosis for SOD.
had my gallbladder out in 2008, I’m 41 year old woman. For the last6 years I’ve been suffering excruciating attacks - pain very similar to gallstones but so much worse and radiating badly through to my back. Pain is upper stomach to the right slightly. I’ve fad hours of it over Christmas - Christina’s Eve 1 hour, Christmas Day 4 hours, Boxing Day 5 hours and last nights joy was 6 hours of horrific unrelenting pain. I went to A&E last night where they gave me oramorph which actually made it so much worse!
I had a clear endoscopy on the 22nd and contrast CT done last night that they couldn’t see anything on. Bloods apparently were okay but I don’t know what they tested.
Who do I need referring too? Drs aren’t particularly helpful and I think if I go in with a strong request it will be better. Any advice welcome - I can’t go on like this!!!!

OP posts:
OrlandointheWilderness · 29/12/2025 16:21

Thanks @MrsDoubtingMyself

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OrlandointheWilderness · 29/12/2025 19:10

Slight update - saw the GP this afternoon who was wonderful. She agrees it is very likely to be SOD and has referred me to gastroenterology, and will put a request in for the ask/advice service with a consultant too. She looked at my bloods from sat night at A&E and said my liver and kidney results were abnormal too which supports the diagnosis. I’m having repeat bloods soon to build a picture and she’s requested a copy of the CT treat CT from the hospital. She’s also put buscapan on a repeat script.

OP posts:
hairypaws · 29/12/2025 19:19

Do you regularly take codeine? I cannot take it now after removal of gallbladder. It gives me an attack the exact same as gallbladder attack. I was fine with codeine prior to removal. It is quite a well known symptom.

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OrlandointheWilderness · 29/12/2025 19:35

No @hairypawsi very rarely take painkillers at all. Certainly won’t be taking it now!

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