I'm currently sitting up in hospital with my 32 year old son who has severe autism and learning disability.
He's just had half his thyroid taken out, and his parotid gland, he underwent biopsies before this which were inconclusive, he's been in surgery for 5 hours. I feel so bad for him, he's been so brave and so strong. They've just tried to fit a catheter which had him screaming in agony, they couldn't get the tube in. They were going to call urologist but thank god he managed to do a wee, they've given him fentanyl which he is supposed to administer himself, but can't understand what it means or what he has to do plus it's making him sick. So I'm sitting here in the darkened room, hoping he is getting some rest and pressing the button every 5 or do minutes 😢