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Any ideas?

1 reply

AnyIdeas1 · 11/06/2022 08:13

My little boy will be turning 3 next month but there seems to be so much going on with him at the moment.

We are seeing various doctors about different things but wanted to see if anyone has had any experience and if theres things that could be linked.

Around his second birthday he still didnt have any understanding and wasnt saying many words, those that he did say were hard to understand.

His hearing has since been checked and he has glue ear with moderate hearing loss. He has now got hearing aids which has really made a difference to his confidence.

He has hypermobility

He started ticking, which comes and goes. It started with a noise he made which went and then he started to lift his shoulders. Again this was severe for a week or so , went got a bit then come back. He now does it every so often

At the same time he was ticking, he zoned out a few times too. Was staring into space and like he wasn't present.

He has stopped growing, hasn't grown in over a year. He has a really good appetite eats a varied diet and no concern with his eating but he does still have a lot of runny nappies. He is still a size 5 shoe and wears 18 month clothes that need to be turned up to stay up.

Has eczema, allergies and asthma

He is very active and so happy. He still has quite a long sleep in the day and can seem quite tired by the end of the day.

We have various appointments and a lot of things have been dealt with separately so now wanting to see if things could be more connected.

We had an appointment with a pediatrician who wants to see us after some more tests and waiting to see a dietician but wanted to see if anyone has had any similar experiences and if there is anything we should be pushing to get looked in to more?

OP posts:
Procrastatron · 11/06/2022 08:56

gosh this sounds really stressful, there is so much going on I would have no idea whether there is one thing of a bunch of simultaneous things. The ticking/jerking and absences sound like they could be JME (epilepsy) and the growing and tiredness thing could be thyroid or many other things. A family member developed both of those around the same time but primary age rather than toddler. As far as I know they aren’t connected just bad luck.
Good luck with getting the support you need

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