I have ME/CFS and I have done for a very long time. A couple of days ago I over did it with a few necessary household chores and a brief emergency dash to the store. By late evening I had severe pain in my lower back and legs, I’m used to this. I took some painkillers and went to bed.
However, what came next I’ve never experienced before. I went to sleep and woke a few hours later to go to the loo. My whole body from my neck to my toes was so stiff and achy, I had to shuffle to the loo. My shoulders, neck, back, legs, ankles and feet all aching and sore. It hurt to move.
I got back in to bed and whilst lying down I felt like I couldn’t breathe deep enough. I wasn’t struggling I just felt like I was pausing and having to to breathe deeply to get a breath. I’ve also been having on and off tingling in both sides of my face.
The next day , I was ok but extremely exhausted and I feel internally bruised from head to toe from the aching. I’ve got a continuous mild headache and on and off tingling in my head still.
Does anyone else with ME/CFS get this?